Archive for the 'medication cost game' Category

Color me SHOCKED

(whatever color shocked might be)

I went to the pharmacy to get M.’s prescription yesterday. All the hoop jumping worked. The Pharmacist remarked that she has never, ever had to do all this stuff to get a script through before.

I fully expected that it was going to be a high tiered script. I play a game before I pick up new prescriptions, where as I’m walking into the pharmacy, I guess how much the script is going to be. I’m usually right.

I had to pick up a few more things, so I was expecting the final total to be well over $100. I was extremely surprised when it came to less than $30. Despite all the hoops we needed to jump through, M’s new script is a low tier, $10 script. That’s a savings of $50 a month, if the Qvar works for her.

Last night was a bad night. I’m chalking it up to the med switch, and letting her body adjust to it. She is sleeping in my room for the weekend, because we have company, and the company is sleeping in her room. I spent 10 minutes waiting and watching, trying to determine if the cough was from a drip or in her lungs. I decided that a treatment wouldn’t hurt, so I got it set up…(I had planned ahead, and had moved the machine from her room to mine, and had meds ready.) I climbed into the toddler size aerobed…and did her treatment. She was quiet the rest of the night, which confirmed that the cough was lung, rather than drip.

Hopefully, the adjustment is fast, and the new med works.

Since M was diagnosed, before age 2, she has been on
*Flovent (failed)
*advair (failed)
*Atrovent (seems somewhat effective)
*Symbicort (seems somewhat effective)
*Pulmocort (only when she is sick)
*Albuterol neb (rescue)
*Xopenex (rescue inhaler)
and now, Qvar (yet to be determined)

The last time we were at the pulmonologist, he asked how often we used either the rescue inhaler or neb machine. He wasn’t so thrilled when I said “we’re doing really good lately. She doesn’t need rescue more than 4 times a week. Apparently, she is not supposed to need a rescue at all. Go figure…I really HAD thought that an average of 4 times a week was good. Perhaps, eventually, we’ll get her under complete control…until then, we’ll keep trying until we do.