Archive for the 'cough' Category

Probably only funny to ME!!!

I was babysitting for my friends son last night. He has Cystic Fibrosis…so we did his airway clearance. (Should have taken a picture of them sitting on the couch, each doing their acapella) and gave him his meds.

I tucked them all up to bed, he got his own room, with fresh sheets. (just to make sure there weren’t any bacteria monsters hanging out there) and Abby and Mariella shared a room. I settled down on the first floor, to read.

I’m absorbed in my book when I hear a cough. My ears perked up…because I couldn’t tell right off who it was. I heard it again…so I went to the stairs…still couldn’t tell. So I went up, and thought I would ask D. (obviously, I SHOULD recognize my OWN kids cough…) The child looked at me like I was nuts…and actually told me that, “Um, SARA…my medicine makes it so I DON’T cough..”

So, of course…it was Mariella. I nearly brought her into my room…because I didn’t want the cough to bother Abby…but Abby was insistent that they have a sleep-over. So I puffed her, and let it go.

We kind of laugh, when both the kiddo’s are having trouble…if they are in the other room together, and there is coughing…we often hear…”That one’s not ME” or “It’s me…I’m ok”…or even better, when Abby comes in and says…”Jeez…they’re BOTH coughing like CRAZY!”


Yesterday, Mariella had a quick, tight cough going on…just one little fit, and then she said she was good…but I gave her a hit of Xop anyway…just to be safe. She didn’t cough all day…(she said) and I didn’t get a note from the nurse stating that she had been to the clinic for a rescue puff. Last NIGHT, though…she coughed enough that I was contemplating nebbing her…then, I fell back to sleep. Mariella is complaining about being “really, really more tired than usual” Which leads me to believe that she didn’t sleep well last night. I’ll give it a day or so before I start the sick plan, since I’m really NOT sure what’s going on…is she starting a flare…or is her reflux kicking up more? (she’s been complaining about volcanoes in her chest again…even on Prevacid 2x’s a day.) More reflux usually means more coughing…which leads to a good flare…but, I really just don’t know what to do. I hate not knowing what to do.

I wonder if we should start using a peak flow meter? How young is too young to use one? Will I have a better handle on what to do with more information, or will I totally freak out more? Definitely something to ask about at our next appointment.

Argh…Parents just don’t understand!!!

M is HOME!!! I LOVE, LOVE, LOVE that my parents are willing to take her for the week, but I am sure glad to get her back when vacation is done.

According to M, Grammy and Grampy were compliant with meds…THAT’S good. She was told to Acapella at least every evening, especially on ski days. She told me that Grampy never gave her the Acapella. However, she IS six now, and should be asking for it, if I’ve told her she needs to.

According to THEM, she didn’t cough at all (I’m not sure I believe it) M said she was a little tight, but didn’t cough. She didn’t tell them because she was afraid they wouldn’t let her play.

The place they go has a great recreation room in the basement. Lots of open space, and it’s really good for running around. I did it when I was a kid, and I’m glad that my girls have been able to play there too. I WISH we had such a great place for her to run around and play.

I get so so so tired of my parents telling me how “great” she does when she is with them. It makes me feel like they think I’m making it all up. I have CT scans of the air pocketing in her lungs. I have X-Rays that show her occluded with mucus from top to bottom of her lungs. It was warm out, so no, her lungs weren’t going to rebel as hard as they might have if it had been freezing cold out. It was rainy and wet…not icy cold. It’s just so flipping frustrating.

My parents also need to learn that M, especially, will rat them out if they don’t tell the complete and honest truth. I KNOW that they did this not to worry me, but they told me that Mariella only “threw up the once” It’s not surprising, really…I’ve been waiting for a good blow for about 3 weeks. She has gone her longest ever without throwing up. M, however, told me she threw up “a couple times.” The jury is still out as to whether or not she TOLD anyone she threw up, or if she just took care of it herself. Two would be fairly normal, more than that, no. It will be curious to see if she flares now. It’s about 50/50, whether or not she flares after an episode.

I can’t believe my father forgot to bring his camera. No skiing pictures this year.

(and, about 25 minutes after I posted this, she started coughing. Somehow, I don’t believe she didn’t cough the whole time she was there. It’s a nice deep cough, not quite barky…so I’ll see where it goes.)

So, my kiddo is a little weird…

A couple of nights ago, M. was sleeping in our room. She started coughing, and rolled over. She popped her eyes open, and said, “Momma, I need a treatment.” As I started to open the medication, she had rolled over, and gone back to sleep. She didn’t cough the rest of the night.

I think she was dreaming about having an asthma attack…asked for the treatment in a half-asleep state. The cough itself might have been part of the dream.

M does seem to be doing well on the new med. She is still coughing a little bit, but nothing I feel I need to give a treatment for. Time will tell how it’s really working, but for now, I’ll take what we can get.