Drive By Posting…..

I got a letter from the Endocrinologist today.  Basically, all her tests came back normal.  No Turner’s Syndrome, and the steroids aren’t impacting her adrenal/pituitary system.


What I’m not understanding is…if the steroids aren’t impacting her adrenal system, does that mean they aren’t impacting her growth, that the steroids aren’t causing the growth failure.  The child hasn’t grown measurably for THREE years…a complete stoppage for 2 years…so what the hell is causing it.  I was all ready to get a tidily wrapped “this is the reason” kind of package…and we didn’t get that…we know it’s not the adrenal system…but what is it.  Is she malabsorbing?  Is it just that she expends all of her  calories surviving that there just isn’t any left over for growing?


I’m frustrated, angry, scared and sad.  I don’t like not knowing the answer…I don’t like not being able to fix it.  I’m OK with small…I’m not OK with total growth stoppage at age 7, 40 something inches and 36 lbs.

1 Response to “Drive By Posting…..”

  1. 1 Elisheva April 9, 2011 at 5:41 pm

    That’s gotta be very frustrating. And scary. Hugs…

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